Projects & Grants
| Assessment of the needs of parents of children in palliative care | |
|---|---|
| Project Id | SGS24/LF/2023 |
| Main solver | Mgr. Petra RŮŽIČKOVÁ |
| Period | 1/2023 - 12/2023 |
| Provider | Specifický VŠ výzkum |
| State | finished |
| Anotation | The project will focus on the issue of pediatric palliative care, which requires specific knowledge and skills and is significantly different from the care of adult patients. The child goes through different developmental stages, has different communication needs, is dependent on the family, his illness has an impact on the family, siblings, and children with a wide range of illnesses are included in palliative care (WHO, 2018). In the pediatric population, there is a wide variety of conditions that require palliative care and a significantly higher proportion of non-cancerous diseases compared to the adult population. The average need for palliative care is therefore significantly longer than in the adult population (Bužgová et al., 2019; ČSPM). There are significantly different needs in pediatric palliative care compared to the adult population. A number of surveys have been conducted in Europe to identify these needs. 10 basic points that characterize the needs of children in palliative care are summarized by the ICPCN Charter (International Children's Palliative Care Network), which defines the rights of children with life-limiting and life-threatening illnesses (ČSPM; ICPCN, 2008). Assessing the individual needs of patients and their family members is important for providing individualized care and allows health professionals to identify areas that the patient and family consider important and need help and support. Most measurement tools in palliative care are intended for the adult population, but they cannot be easily transferred to pediatric practice, and there is a lack of an evidence-based tool that can be used in pediatric palliative care (Bužgová, 2015). In the Czech Republic, there is no standard tool for assessing needs and services in pediatric palliative care. The importance of the project lies in the identification of the needs of parents caring for a seriously ill child. |
